random thoughts of a tired mind…

I’m tired.

Well, not now, as in now as I speak, or I should say, as I write. I’m just a tired sort of person sometimes. I have a new sort of beast to contend with thanks to MS and that is fatigue. Apparently it’s one of the main symptoms of the disease. I’d guess that if you pulled a random person off the street and said: “Multiple Sclerosis”, the first thing that would pop into their mind is “wheelchair.” But while not most people with MS are (or ever will be) in wheelchairs, most people with MS get TIRED.

MS fatigue is a funny sort of thing. And the odd thing is that I sit writing this late and night and you’d think: “Isn’t she tired?” but no, MS fatigue is unpredictable and comes when you don’t want it to. So yeah, I’d love to be drop dead tired enough and fatigued enough at bedtime to be able to hit the pillow and snooze, but NOOOOO, the MS brain buggers have decided that my fatigue only comes at the peak times of the day like mid-day, or early evening when it’s too freaking early to turn in for the night. So at night, I end up taking half or a third of a sleeping pill in order to sleep because I have insomnia!

I thought of fatigue today because I read a study that looked at how mothers with chronic illness deal with fatigue. Apparently the MS moms tended to deal pretty well with it the study found. I found out from the report that other diseases like rheumatoid arthritis (that also predominantly strikes women) cause similar fatigue.

So my mind wanders to a wonderful lady with grown up children who has lived with rheumatoid arthritis most of her adult life. She raised three kids as a stay-at-home mother and battled a horrible horrible disease that leaves her in unbelievable pain. I only know this from looking at how the disease has ravaged her hands and feet–I don’t know this from her because guess what? She never, ever complains about her health. I have sat with her on several occasions and she is the most uncomplaining, patient person I have seen. The only hint that I got of how much she deals with on a daily basis was when I asked how her recovery was from a surgery, and she said, “Thank Allah. I would never wish this disease on my worst enemy.”

I imagine sometimes what bountiful rewards such beautiful people have waiting for them in the next life. There is a wisdom in Allah’s decree. Things go wrong–way wrong, and we are left in the dark, with a seeming blight upon our life. Yet the character of a person can take that test and emerge shining with the noor (light) of patience, forbearance, and humility. I feel ashamed when I look at that sister and think of the times I complained or wept over silly, foolishly small afflictions. So yeah, being tired is not so bad of a thing after all, methinks.

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2 thoughts on “random thoughts of a tired mind…

  1. SubhanAllah sister…i can’t say i know how you feel but i truly admire the fact that you are able to see lessons in your affliction.

    My cousin also has MS (she is about 23 yrs old) and I’m so inspired when I’m around her or when I talk to her. She is very into the deen, she memorizes, learns from the computer and still has her own house chores like her siblings.

    There’s a saying in Arabic I cannot help but remember: Health is a crown upon the heads of the healthy, but it is only seen by those who are sick.

    May Allah make it a purification for you and her and grant you and your families the best in the aakhirah.

    Like

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